An update

Hello everyone!  Once again, it’s Carrie – not Jeff.

I wanted to share an update, because today is a significant day.  Today, April 8th, is exactly six months since Jeff was diagnosed with his brain bleed, changing our life completely.

First, a couple of pieces of good news:

  1. Jeff recently had a CT scan with contrast. That test is nearly identical to the test that found the original bleed.  This time, the test determined that he is completely stable and has no additional bleeding.
  2. Both of Jeff’s therapists have reported that he is progressing very well.  He has improved in both speech and occupational skills.  I’ve noticed the same.
  3. Jeff is doing all the physical activities he was doing before the bleed, including puttering in the garden (weather permitting), taking walks, doing his own laundry, and cooking.

Now, onto the continuing challenges (There’s no bad news – just challenges):

  1. It takes Jeff a long time to read the newspaper, because he has to read slowly to understand what’s he’s reading.  The same can be said of articles in Science.  I’m glad he’s reading.
  2. Jeff still has trouble finding the correct words at times. However, we both have learned how to work through that.

I was so proud of him this past Sunday.  It was our 36th wedding anniversary, and he made a dinner reservation without any help from me.  He gave great thought to setting the time, because we both wanted to watch the Pittsburgh Pirates’ afternoon game.  Normally, there would have been no problem with a 5:15 reservation time after a 1:40 game start. But, this is the Pirates, and they are really good at complicating matters. They managed to blow a 4-1 lead in the top of the ninth.  Luckily, they were able to walk it off in the bottom of the 11th, so we made dinner on time.

In the before times (prior to 10/8/24), I would have taken all the above for granted.  But it’s now the after times, and small things like this are reasons for rejoicing, because it is real progress.

The journey continues . . .

The Missing Man Returns — Sort of

Hello everyone!  If you have missed Jeff’s posts, there is a good reason for that. Before I tell you why, I need to tell you that I’m not Jeff.  I’m Carrie, his wife, and I’ve taken over for the time being.

On October 8, 2024, Jeff woke up speaking a language not known in this universe – Klingon, maybe? After listening to his gibberish for a few minutes, I told him something was not right with him and we needed to see the doctor. One phone call later, and we were on our way to her office. It took her about thirty seconds to realize that we needed more help than she could give. So, off we were again, instructed to go directly to the local ER, and NOT to stop at the local Tudor’s Biscuit World (that’s a thing in West Virginia).

We arrived at the ER for Thomas Memorial Hospital in South Charleston, WV.  Jeff walked into the ER under his own power (that will become important later).  Testing revealed a brain bleed located just above his left ear (that also becomes important later).  He was then whisked into a helicopter for a trip to Ruby Memorial in Morgantown, WV, flagship hospital for the WVU Medical system.  I followed in my car after a stop at home and drove up the interstate at about the same speed as the chopper, alternating between prayers to arrive in one piece and rehearsing what I would say to any police officer who stopped me.

When I arrived at Ruby, I found Jeff in the Neuro Critical Care Unit, where he was taken after having been stabilized in the ER.  I also found my son Andrew. He arrived while Jeff was in the ER, He had a shorter trip, since he was coming from Pittsburgh.  I couldn’t have gotten through this without him.

For each of the next two days, Jeff underwent a procedure in which the surgeons entered his body through his groin, somewhat like a cardiac catherization. Unlike the more familiar cardiac version, the surgeons threaded their instruments to the brain, using x-ray as a guide. There, they shut off the blood flow, using a combination of surgical glue, mesh, and cauterization. It was necessary to do this twice because there is a limit to the amount of radiation a person can have in a day. But after the second procedure, one of the neurosurgeons, Dr. Lee, came to Jeff’s room, showed me images of Jeff’s brain, and told me they believed all the vessels had been shut off.  He used the word “cure.”

To me, this is a miracle of modern medicine. Thirty years ago, a brain bleed like Jeff’s would have likely resulted in either death or permanent brain damage, possibly rendering a person a vegetable.  Fifteen years ago, surgeons would have had to shave the head and saw through the skull to reach the bleed. Such invasive surgery had very little in the way of guarantees and a whole lot of risks.  I find myself grateful.

Jeff’s brain bleed (actual medical term is hemorrhagic stroke) was caused by something called and A-V malformation that Jeff may have had all his life. Normally, arteries lead to capillaries, which then lead into veins.  Arteries can be imagined as the water main carrying water up the street – high pressure lines.  Veins can be imagined as the plumbing inside your house – usually lower pressure lines. Capillaries in the vascular system serve the same function, in part, as a pressure reducer found just inside a house’s plumbing system – they reduce the pressure of the flow. In an A-V malformation, the capillaries are missing, putting too much pressure on the veins, which, in Jeff’s case, began to bleed. His general blood pressure had been elevated,  exacerbating the situation. 

In total, Jeff was in the hospital for sixteen days. After a few days of heavy-duty monitoring in Neuro Critical Care, he was moved to the general Stroke Unit, and ultimately to rehab at the United Hospital Center in Bridgeport, WV.   There, he received at least three hours of therapy daily, divided between physical, occupational, and speech.

On October 24th, Jeff was released to come home and start receiving outpatient therapies. He no longer needs physical therapy. What he did have as an inpatient was to restore strength after the surgeries and just from being in bed so long. The brain bleed did not affect his mobility (remember what I said about his walking into the ER).  He continues with speech and occupational therapy because the place where the bleed happened is the area of the brain that governs speech, reasoning, concepts of time, and memory.  It will be a long-term project (years, maybe) to get those things restored to the extent they can be.

A few final observations about this experience:

  1. It is NEVER a good idea to give someone four different laxatives at once. ‘Nuff said.  At least I didn’t have to clean that one up.
  2. The nursing staff are the real heroes/heroines in the hospital system. See point #1 above.
  3. Although the care at Ruby Memorial was outstanding, being hospitalized there is problematic during football season. The front of the hospital is a parking lot away from the WVU football stadium, and hospital parking is kicked off the lot for home games.  Since my car has a license plate frame that says, “We Are Marshall” (in-state rival), I made sure to observe the deadlines, because I really didn’t want to be towed.
  4. Thank goodness for Medicare and our Medicare supplement plan.  From the time Jeff walked into the Thomas ER, until he was discharged to come home, every bit of the cost has been completely covered.  That included the medical helicopter, originally billed at over $62,000.00.
  5. I have the best sons.  David and Andrew have been completely supportive throughout, as much as they can be, with the demands of their work.
  6. If you know someone who is the caregiver for someone who is in long-term recovery, be nice to them. It’s a hard job.  Better yet, ask them what they need in the way of help, and then follow through.

If you have read all this, thank you.  Jeff hopes to be back soon.

Five Years of Blogging

It is now February 2022. Five years ago, in 2017, I began blogging. I don’t know what percentage of bloggers ever make it to five years of writing, but I have. If you scroll back through my writings, I hope you can see the writing has improved over the years. At least I believe it has.

The best part of blogging is starting out with a blank piece of (electronic) paper. Especially since the topic of my writing is often not apparent until after I begin writing. I let the words flow as they will. Now, I have dabbled in fiction, and got along just far enough for me to appreciate authors who say their characters take on a life of their own, they just give voice to these fully-alive entities who exist only in the imagination of the author. I’ve tried it, and discovered the voice I gave to my characters was wooden and stale. So I’ve no doubt that I’ve found the perfect medium for my writing, roughly 1000 words on a topic I choose only after I’ve begun filling the screen.

That’s not to say I’ve not used these pages to express satire, and even to come up with recurring characters. Slimey the D.C. swamp monster comes to mind every now and then, when satire seems the best way to comment on the events of the day. I’ve also had fun in exaggerating the characteristics of the Trump cult over the past few years.

A target-rich environment. That is what we had for several years. Actually, I started my blog just as the Trump administration came into being. I had to express my revulsion at the man and his entourage and am proud that I was able to identify trends in behavior well before I saw them discussed in the media. Like the attempted neutralization of certain governmental entities via the extremely effective technique of just not nominating people to fill legally-mandated positions. Fortunately, he was relatively ineffective at knee-capping the overall Federal government, mainly due to his own incompetence and due to his unfamiliarity with how things worked. My fear is that during the upcoming elections, he will be more equipped to effectively wield the power his position commands. Either that, or one of his underlings who gained office during his reign will use Trumpian techniques, but with someone whose mental capacity exceeds that of Wile E. Coyote. Many, many similarities between The Donald, and the cartoon image of a mangy mongrel who cannot help but extol his own intelligence.

Just as there’s much more to life than politics, I’ve used this forum to share slices of life as I observe the world, especially in summer from my front porch. I’ve reminisced about college days, as I realize that attending college in the early 70’s gave me a perspective folks today just cannot match. I mean, going with my sons to tour colleges, and seeing the make-to-order food expected by today’s students vs. the single-line, take it or leave it, offerings we had at our dorm. The contrast is incredible. At least both of my son’s had to share in the experience of not having air conditioning, although I doubt whether their heating system in winter was so effective one had to open the windows to let in some sub-zero air to temper the excessive steam heat.

For the first two years of writing, I participated in the WriterBeat community. This was a wonderful community sponsored by an individual where my writing was guaranteed readership and feedback. I would post in my blog, and immediately post the same piece in WriterBeat. This was an environment where wildly divergent points of view were all equal, and you were mandated to comment on other’s work in order to retain your privilege of posting. Alas, the owner of this community never found a way to monetize it, and so it died. I’ve considered going to Substack, but am still willing to keep this a totally free site, where once per year I have to pay to feed my vanity. I greatly miss the feedback I got from WriterBeat. If folks here would feel freer to comment on my pieces, I would appreciate it and will respond.

I started off by saying my writing often surprises me, since I had no idea I would end up discussing something not even in the front of my mind when I started. Sometimes it is the act of writing that unleashes the thoughts that must have been swimming in my cortex just below the surface. This piece is the exception. I looked back at my five years of writing, and realize I had to discuss just what I get out of keeping up a blog. I’ve worked it out so about a post a week is what I like to do. Just enough to keep my feet wet in the writing world. I hope you enjoy this.